My journey to new lungs and new life

Follow my ongoing journey with new lungs and a new life

Tuesday, 21 May 2013

I Did It!!!!!!!!!!!!!!!!!!!!!!!!!!!!



I successfully completed the 36 floor abseil to raise money for Save the Children - Australia dressed as Batgirl. It was a lot more daunting than I thought, 140 meters above the ground is quite a ways and I was glad that I wore the face mask because when I tried to look down whilst dangling there, the mask obscured my view and I couldn't see how far I could possibly fall! The entire thing was organised wonderfully and I was particularly impressed with the abseiling staff. They were all complete professionals and I felt so safe and secure under their capable guidance. Well, as safe as one can feel inching my feet off a ledge 140 meters above the ground. 

The rope that went from the top of the building to the ground was incredibly heavy, 25 kilos, and I simply couldn't push it through the "whale tail" metal thingy to propel myself down, I don't have the physical strength in my upper body yet, so the wonderful team did all the work for me and gave me a thrilling ride down so I could bounce off the glass and whizz down as fast as I wanted. 

On the whole it was a fantastic experience and I was so incredibly touched by the support, both financially and otherwise, that I received from my friends and family. I raised a total of $1560 to help Save the Children and since this is the first time I have ever done any fund raising like that, I am blown away by this amount. 

So my two big celebrations for my 12 month transplant milestone I have achieved; getting married to the man of my dreams and doing a big adrenalin inducing event. What's next for me I wonder??????


Love
Kylie

Wednesday, 15 May 2013

Announcing Mr & Mrs Stone



On the 4th of May at 6.00 pm my amazing fiancee and I eloped at the Little White Chapel in Las Vegas. Whilst in hospital recovering from my transplant an entire year ago I decided that I wanted to have something big to look forward to for if I made it to 12 months, so Brad & I opted for an overseas holiday. We had been engaged for a while so we decided to combine the holiday with our wedding and make it our honeymoon! 

We flew into Las Vegas on 1 May and stayed at the Trump Hotel and then got married on Saturday 4 May. The next day we did a tour to the Grand Canyon, which was breathtaking, then we flew to Auckland, New Zealand on Monday. We did the Auckland Harbour Bridge climb while there then we arrived home on Saturday 11 May, just in time for Mothers Day! 

My husband and I had a fantastic trip and I am very proud to say that I designed and made my gown, I decorated my shoes and I also make my birdcage veil and feathered headpiece; it was so much fun and so interesting a project to undertake. I'll be posting some pics of the process I went through soon. 

Life is good!


Love
Kylie

Wednesday, 17 April 2013

12 Month Celebration!!!!


To celebrate 12 months since my successful double lung transplant I have decided to participate in an ultimate adrenalin challenge, abseilling 36 floors down the 'Gold Tower' at 10 Eagle St, Brisbane on Saturday 18 May 2013 dressed as Batgirl!
I am aiming to raise money for charity and I would welcome any contribution, great or small, that you could make!

Check out my fundraising page: 
http://36floors.gofundraise.com.au/page/anunfinishedlife


Monday, 10 December 2012

What It Means to be Poor

Billy all dressed up with his tie on! 
Hello everyone!

Last week it was 7 months since my transplant and I feel terrific! I have had no bouts of rejection and we have even been able to start lowering my meds, yay! I'm back at work full-steam and loving it. Brad and Billy are wonderful, I fall in love with my beautiful fiance a little more each day, he just amazes me with his ability to come through for me and make my life better just by being in it. So what's been on my mind lately?

Years ago I read a human interest article titled "What it Means to be Poor" where the author interviewed many people living below the poverty line in America and had them sum up in one to two sentences what it means to them to be poor. The answers were heart-wrenching and incredibly insightful for myself, someone whom has grown up poor but never actually did without anything I really needed and was certainly nowhere near the poverty line. One particular response in the article has always stuck with me: Being poor is still paying the price for your bad decisions, years later.

This recently came to my mind when Brad finished paying off a personal loan that he had been carrying around for years. I'm so proud of him; when we met he had several loans and a sizable credit card debt and in a few short years he has paid off the loans and now just has the credit cards to pay off. Now I am extremely cautious financially, growing up poor my mum instilled in me great budgeting skills and then my ex-husband and I never got into senseless debt; we drove old cars and budgeted strictly. Therefore being in debt with personal loans and credit cards is completely foreign to me, so when Brad told me how he had finally succeeded in paying off his last loan, I asked him what it was that made him get into such debt in the first place. His truthful answer really surprised me, when he was in his early 20's (he's now 31) he was in a long-term live-in relationship and his girlfriend was chronically unemployed. So Brad was going to college and working part-time to support himself and a lazy-assed girlfriend who just simply didn't want to work.

Because he was out of the house so much he would give her the cash to pay the bills and come home to find that she had spent the money on takeaway food and clothes. These were the days before EFT and the like, so a few months down the track they would get a final notice on unpaid bills, including rent, and he had no choice but to get a credit card to get the electricity reconnected. This went on for a couple of years and I incredulously asked him why he put up with it? His answer: She was hot. He knew that she was just lazy and using him, however he had low self-esteem and was willing to pay for everything to keep her.

So that brings me to the article on poverty: Brad was still paying the cost of his bad decisions years after the relationship ended. Isn't that incredible? The decisions he made as a young man with no self confidence literally took him years to pay off. Looking back on my life the main decision that I made as a young woman, or rather inaction on my part, was not looking after myself when I was younger that would possibly have put off the need for the transplant. Things may have worked out with the transplant, however the fact remains that I  now have more-or-less a time limit as to how long my new lungs will most probably last for (10 - 15 years on average) therefore each time I didn't exercise, I didn't do my physio or I didn't take my  meds when I just had cf, has literally taken years off my life. Hindsight it a wonderful thing, woulda-shoulda-coulda, but I can honestly say that this hindsight has given me a very strong determination to do everything within my power now, to preserve my new lungs and possibly prolong what lifespan I do have left.

Give some thought to what decisions you may be making in the present that could negatively impact your future.



Love
Kylie



Monday, 15 October 2012

To Make You Smile



I thought I'd start the new week off with a pic to make you smile - Billy the Kid getting his tummy tickled.

Everytime I look at it a goofy smile crosses my face.

I love my Billy Boy x

Monday, 17 September 2012

Billy the Kid

Billy the Kid first thing in the morning

Billy out shopping with mummy

Tuesday, 11 September 2012

Introducing.........

Introducing William Jackson Lowe (aka Billy); Billy joined our family a couple of weeks ago after the tragic loss of our beloved Teddy. I really struggled with the decision to get another dog so soon after we lost Teddy but I really wanted one and I just felt ready. My house doesn't feel like a home without the patter of furry feet running around and Brad was fine with a new dog as long as it wasn't too soon for me. I kept envisioning people telling me off for getting another dog so quickly so I was prepared with a comeback should I need it. I was going to point out that because of the transplant I probably only have around 10 - 15 years left so why should I put off something that I really wanted just to make a stranger feel better about my decision. Well I'm happy to say that overall I have received wonderful support from my friends and family so all that planning of what I was going to say was for nothing!

Anyhoo, Billy the Kid is lovely; he is 12 weeks old and has a totally different personality to Teddy, which we expected of course. Billy is very much an excited-puppy-daddy's-boy and he only wants me when Brad isn't around. At first I really struggled with this; I was excited to have a puppy that I could carry around and mother but in the first couple of weeks he completely ignored me and refused to have anything to do with me. After spending time with just the two of us he now seeks me out and even naps on my foot when the fancy takes him!

Billy isn't the quickest learner in the world, it took him a week to learn to come when called and potty training was stressful; he would go downstairs to pee then come upstairs to do his poo!! But now he goes downstairs for both and the entire household feels calmer for it.

I think he is a beautiful little boy and he has brought some sunshine back into our home. He will never replace Teddy, since losing him I have realised that Teddy was everything in a dog that I had ever wanted, but Billy is his own unique self and he makes Brad and I smile.


Love
Kylie