My journey to new lungs and new life

Follow my ongoing journey with new lungs and a new life

Friday, 29 June 2012

What I'm Reading

I'm currently reading a great book titled "Outliers" by Malcolm Gladwell and it has really had an impact on me. In it he talks about the two very different paths of two geniuses; one with an enormous IQ, growing up on the right side of the tracks and going on to huge academic success, the other growing up on the wrong side of the tracks, achieving absolutely no academic success yet his IQ is considerably higher. Now I grew up poor, real poor and I also had the distinct disadvantage of being an ugly child, so as a poor, ugly child I learned very early on that it was best to be as invisible as possible and not draw attention to myself. Malcolm Gladwell argues in his book that the difference between the success and non-success of the two geniuses is the social structure they grew up in, in a nutshell poor people teach their children to be meek and subserviant and obey orders wheares middle-upper class people teach their children to speak up for themselves and to be noticed and confident.

Now this is a huge revelation to me; I thought that I just happened to be ugly, shy and poor but if I look back, I learned to not draw attention to myself otherwise I would be ridiculed or bullied. The thing that really blows my mind is the far reaching implications this "learning" has had for me as a child, as an adolescent and as an adult. I'm very different now to how I used to be; shy, self-hating with no self-confidence yet I still have to force myself to speak up and stand up for myself, particularly when with figures of authority. 

When I'm sitting listening to one of the transplant team tell me that I am going to do something or other, my first instinct is to say ok, and just do whatever they tell me to, but I force myself to question them, to ask, Why? What are the possible side-effects? How long do I have to do this for? It's a real challenge to me. Even though I appear to be a successful, together woman, and for most parts I am, but there is still a little tiny Kylie inside me whispering "Be quiet, don't draw attention to us, be invisible!" This little voice gets smaller all the time, but it takes effort. It takes a constant positive inner dialogue and healthy self-talk. 

But its worth it, its so worth it.

Love
Kylie

Wednesday, 27 June 2012

Happy Anniversary!


Happy Anniversary Chrissy and Chris!

My beautiful cousin Chrissy celebrates her wedding anniversary with her wonderful husband Chris in a few days and I wanted to share with you the toast that I gave at their wedding:

I propose a toast to the happy couple who have been joined together in marriage. As a divorced woman myself, I have bags of wisdom on this subject, one of which has stood me well: never go to bed angry, always stay up and argue! In preparing for today I found myself wondering: what is love? Is it the blush you feel when you first set eyes on each other? Is it your skin tingling when it comes in contact with theirs? Or is it hearts and violins and romantic gestures? Then I look at the bride and groom and realise that quite simply, love is smiling from the inside out.

As most of you know, Christine and I are cousins, to some extent we grew up together and she holds a very special place in my heart. As a little girl I adored my cousin Chrissy and I used to follow her around incessantly, trying to be just like her. I used to sit on her bed and watch her get ready to go out on a date; she would go to great pains to co-ordinate the perfect outfit and do her hair and make up just so, then came my favourite part; she would practice dancing in front of the mirror. After she left I would stay in her room and try my hardest to copy her dance moves. Christine, we have shared so much of our lives together and I am honoured to be sharing this day with you. I admire you for your beauty, adore you for your virtues and love you because I just can’t help it. Starting today, you will begin to share a life with Chris, but remember that I will always be here for you, standing by your side.

Now, in the movies the good guy always gets his girl and that is exactly what has happened in this instance; Chris is a devoted father of two terrific children that will join our family and he absolutely adores Christine. As Christine’s cousin, the only criteria that I set for her future husband is this: he must love and adore Christine like the amazing woman that she is, and Chris does this without a doubt. Chris’s whole face lights up when she enters the room and as individuals, our Bride and Groom are both great people but together as a couple, they are unbeatable.

Christine, Chris, the love you show to each other is inspiring and beautiful and I look forward to seeing it continue to grow. So please charge your glasses; to the newlyweds: may the best day of your past be the worst day of your future. 


Love
Kylie

Monday, 25 June 2012

My Weekend

My kitchen artwork
Well my weekend was a complete bore, I studied almost the entire time! All work and no play make Kylie a very boring girl indeed! I'm so bored with myself atm.

On the bright side my house is looking terrific, Brad has finished installing the dishwasher (I've never had one before) and I have just finished painting our internal verandah brackets for our hallway and kitchen servery so Brad can install them tomorrow, we work really well together as a team. Our beautiful bathroom is now completely finished and my ex (our tradie) is coming back to pain the inside of my laundry cupboard in the next few weeks, yay!
So while my house looks beautiful on the inside, the outside is looking very sad so we can't wait to get the back deck built and then the whole house painted, it will be stunning! We are going for the chamferboard cottage look so I'd like some flower boxes with soft coloured flowers on the front patio, divine.

Anyhoo, my house is slowly becoming the beautiful home that I always knew it could be and it is all thanks to  Brad and me, it just goes to show what a woman with vision and a man with get-up-and-go can do together.

love
K

Friday, 22 June 2012

Old Lovers, Old Friends


Today I spent the day with my ex-husband and his two beautiful children. Some people may think this is strange, that two ex-spouse's can be friends let alone close friends, well I don't. I've never had a problem staying friends with my ex's, in fact my ex-husband is one of my closest friends. How could I not stay friends with a man whom once loved me fiercely and I loved in return, and that I shared most of my firsts with, first serious boyfriend, first love, first lover, first husband etc, he's a wonderful man, why would I not want to have him in my life? A friend once replied to this "Because they're an ex for a reason." Well I don't believe that just because the romantic part of your relationship has ended the entire thing has to end, after all, they were your partner for a reason too weren't they? 

That's just my two-cents worth anyway. 

love 
K

Wednesday, 20 June 2012

Realisations

Recently I had a hypnotherapy session with a close friend of mine Bernadette Wright from New Life Patterns http://www.newlifepatterns.com/. My aim in getting hypnotised was to improve my memory and retention skill as I'm really finding it a challenge to read from my Book of Readings for my counselling course then I struggle to remember what I have read 2 minutes later. I had a beautiful experience, it was very sad and I cried quite a bit but I felt such a weight lifted off my shoulders when it was over. Through the session I discovered that my belief system regarding my memory and intelligence began in 1984 when I was in year 4 and we were learning our times tables. Other kids 'got it' so much quicker than I did and it didn't matter how hard I tried, I just couldn't remember my times tables. I remember very vividly failing a test and feeling so embarrassed and humiliated that I had failed and it was then that I "learned" that I had a very bad memory and was stupid. Well 30-odd years later I still have that belief system knocking around in my head, telling me every day that I'm essentially a stupid woman and have a terrible memory. 

That's a big call for a 9 year old to make about herself isn't it? That you're stupid and can't remember anything. I wonder how I would have turned out if my teacher had given me the extra attention I needed instead of telling me that I just needed to go over them again otherwise I'd be in trouble if I failed another test. The ridiculous thing is that as an adult I know I'm not stupid, a stupid person could not have achieved what I have in my life and yes, my memory works, perhaps I don't remember every single thing I read or see but I do have a basic recall of what is important or of interest to me. 

My hypnotherapy session was so uplifting, I reassured 9 year old Kylie that she wasn't stupid and could remember whatever she wanted to and told her what her life would eventually be like when she grew into the woman I am today. It was so lovely to be able to tell her that things would get better and that she would have everything she had ever wanted, and she would achieve it all on her own merit. And I'm damn proud of that! 

What limiting beliefs do you have about yourself that are holding you back today?

love
K

Monday, 18 June 2012

What's Happening

Sorry I've been off the radar for the last week, I got home from hospital last Monday, just in time for my birthday on Tuesday :-) I turned 37, which I am not thrilled with, but what can you do? I have been good, I now only have to go to clinic once a week instead of twice a week, which is so exciting for me.

You see, clinic now entails a blood test, an xray and breathing tests, each and every clinic visit, then you see the physiotherapist, dietitian, transplant co-ordinator and then the doctor; its exhausting. The worst bit is the waiting around but everyone is in the same boat so all you can do is re-read the same 7 year old magazines you read 2 days ago. I can now also drive myself, but locally only, not over 80kms. This is in case of a head-on collision at 100kms would do serious damage to my sternum and lungs.

I had a great birthday, I got woken up to beautiful gifts from Brad then he got my breakfast and I went to a family lunch at my aunt's house. In the afternoon I had two friends from work visit me whom I adore and they brought me some gifts that my workmates had put in to buy me. The day was finished off with a quiet dinner at home with Brad and Teddy with the fireplace blazing because it was a freezing cold night. All up it was lovely, I was spoiled rotten, as it should be in my humble opinion!

I had an exciting weekend; I attended my first Toastmasters workshop in around a year. It was so lovely to see old friends and make new ones. I was lucky enough to be invited as a guest on the day by the gracious organiser and I had actually asked for a minute on the agenda to say thank you to everyone for all the support and encouragement they had given me throughout the transplant. Well to my surprise I was allotted 3 minutes on the agenda so what had been a "I'll just say thanks for all your support" thought turned into a Table Topics on the spot! I must have succeeded in getting across my heartfelt thanks because afterwards several people approached me.

Today I brought an overlocker off Ebay. Although its a few years old, its an Elna and works well and I'm really excited but also nervous to use it. It looks very complicated and Brad's mum had one when he was a kid and his only advice was that 'overlocker' must be a German swear word because that's what you do before you throw it out the window because you can't get it working! Great, thanks for that fiancee-o-mine!

Anyhoo, Teddy is well and looking very cute, his curls are coming back and he's looking like my lamby again. Brad has several new clients and I'm powering ahead in my course.

love
K

Friday, 8 June 2012

A Short Story I Wrote

No signs of rejection, yay!

But I am in hospital again with a lower respitory tract infection and I don't feel like talking about myself so I thought I'd post a short story that I wrote a long time ago:

Every Second Sunday – Her Story

Sometimes I wish I never had her... then I wouldn't have to deal with her father.
Every second Sunday is the worst; I have to smile pleasantly while he drops our 5 year old home, both of them happy and exhausted from another fun weekend together! They say that the best form of revenge is success, so I’m a successful single mother, a career woman who owns a lovely home and a late model car, yet all that still doesn’t erase the devastation and humiliation I felt when the love of my life heard our baby’s heart beat for the first time then turned around and walked out of my life for the next two and a half years.
We were both high when we found out that I was pregnant, staring in disbelief at the little pink line on the home pregnancy test gave us the giggles and we stayed in that disbelieving non-reality for the next 3 months, until I finally came down enough to visit my doctor whom was no fool and immediately ordered an ultrasound. The next day we walked into the sterile office, the stenographer throwing us puzzled glances as we giggled our way through the 10 minutes of preparation. He held my hand tightly and kissed my hair as the image of our baby came onto the screen; as the steady beat of our baby’s heart filled the room his grip on my hand loosened until it lay limp on the blanket. I looked up into his handsome face to see a stranger, who was this man staring in disgust at the baby that we had both created? Then he turned around and walked out, simply left, he didn’t even glance back. The rest of the consultation is a blur; by the time I waddled into our flat all his clothes were gone and I did the only thing I knew how: I reached for my saviour and spent the next 3 weeks in sweet oblivion. Eventually my parents intervened and threatened to seek custody of my baby unless I got clean; so immediately after giving birth to my underweight red-faced girl-child, we entered a mother and baby rehab centre.
Is it wrong that everything I have ever done in my life since that humiliating day is geared toward showing him how great I’m doing without him? My degree, my career, my house, all carefully orchestrated for show, none of it fills the chasm in my soul where he used to be. I don’t really think he’s a bad father, since his unexpected contact 2 and a half years ago he has proven himself to be the kind of father that every little girl deserves: patient and caring and fun and loving. So here I sit yet again, a bland smile on my perfectly made up face in my tastefully decorated living room, swallowing the hysteria I always feel inside when near him, craving a hit, craving a high, anything to escape the fact that I still love him.

Every Second Sunday – His Story

Sometimes after I tuck my daughter into bed, I watch her sleeping; I watch her baby chest rising and falling with each breath and listen for her little heartbeat. The heartbeat that scared me shitless when I first heard it, the heartbeat that scared me clean.
I walked out of the doctors’ office that day and ran home, I threw whatever of mine I could into a duffle bag and jumped onto the next bus that was passing. What was I running away from? The woman who was the love of my life? The responsibility of having a child? Or the truth that my child deserved a better father than a junkie like me? I travelled for 3 days straight, sometimes by bus, sometimes hitchhiking, sometimes just walking, deep into the bush. I had heard of a commune started in the 70’s that a mate of mine had gone to live in; the last time we spoke he told me that if I ever got serious about getting clean to come to him and he’d do whatever he could to help. I spent the next 12 months in that bastard of a place; I don’t know which hurt more; being away from her or the physical pain of withdrawal. I lost count of the times I cried myself to sleep, burying my head in the pillow and imagining it was her hair I was kissing again. Finally I felt ready to go back to real life; life on the commune was hard slog but I knew that life in society would be a million times harder.
I had a plan, but I didn’t stick to it, I asked around and found out that she and the baby had moved in with her parents, good solid people with strong moral fibre and no tolerance for bad behaviour. I stood behind a tree across from the house like the coward that I am, hours later I finally saw her emerge, blanketed from the cold by a warm coat and scarf with a students satchel slung across her body. Her mother stood at the front door waving her off holding a baby, I was too far away to see the child clearly, but I swear to God my heart tightened at the first sight of my off-spring. She kissed the baby goodbye then her mum; I could hear the baby gurgle happily. It was another 6 months before I got to hold my daughter for the first time, she claimed that I was an unfit father and incapable of looking after a child however my solicitor proved her wrong and I was granted partial custody.
Three years have passed and I have turned myself into a father that my daughter can be proud of, my house, my career, everything is done with my baby’s best interest at heart. While my life may be going well in that area, it’s not so good in others. Why do I still wake up at night clutching a pillow to my chest and dreaming it’s her that I’m holding? She and I have never spoken about this wall between us; she refuses to utter a word to me that is not connected to our child. I thought that things between us would get easier with time but it is anything but the case. She is like a figure made of glass; cold, brittle, untouchable, unreachable. She thinks I don’t see behind her mask, she thinks I don’t see the contempt in her eyes as she smiles politely at me, she thinks I don’t know that she’s still an addict. I don’t think she knows that I still love her.

Monday, 4 June 2012

The Dreaded R Word.......................

Rejection, the dreaded R word has now entered my world. I went to clinic today and due to some test results my medical team are concerned that I may be rejecting so I'm having another bronc on Wednesday. Yay, not. Rejection. What. A. Scary. Word. I'm terrified and my mind is still processing it so I can't talk about it anymore.

On a lighter note, since I came home I have been struck by how much I let slide for the last couple of years when I got really sick. My whole house is in disarray and my hands are itching to make it right. I started with my jewelry, all of my necklaces were tangled and impossible to see so I went to a fishing supply store and bought these terrific hook and lure organisers. The dividers can be taken out between sections and I have stored all of my necklaces and bracelets in two of these organisers. Pretty neat huh?

Anyhoo, my head is still spinning from the R word, any prayers you can send my way would be much appreciated.

love
K

Friday, 1 June 2012

5 Unexpected Side Affects of Transplant

It will be 4 weeks this Sunday since I received my gift of life and I thought I'd share with you my 5 Unexpected Side Affects of Transplant:

1. Even though I was told it would thin, the skin on my hands has become papery and crepe-like. And when I get my hands just the tiniest bit wet, my fingers and palms go pruney, gross.

2. From when I woke up after the transplant for the next week, my vision was blurred; to the extent that I couldn't read or watch television. That was apparently due to the high doses of steroids I was on and my sight is now back to normal.

3. My sounds have changed. From the way I belch (very lady like I assure you!) to the way I sneeze, it is all different now and I'm still getting used to it.

4. I've been feeling super creative since the transplant, I've been dreaming up paintings I can do, dresses I can make, you name it and I have an urge to make it. Weird.

5. I now sound like a cheap phone sex worker because my vocal chords were damaged a little during surgery. My voice is now raspy and gravelly but it will get back to normal eventually. And yes, that is hysterically funny all those who have suggested that I can now get a second job. Lol.

love
K