My journey to new lungs and new life

Follow my ongoing journey with new lungs and a new life

Friday, 9 March 2012

Yesterday seems so far away

Good morning everyone, I felt yuk all day yesterday but I feel much better today. Something I wasn't expecting with this whole cf-terminal-illness thing is the pain. I've had pluretic pain before when I've had an infection, that's where the pluretic fluid surrounding your lungs gets infected and gosh does it hurt when you cough or breathe in, both of which you do both pretty much constantly when you've got a chest infection :-) This pain is different, its like my lungs are so full of mucus and scar tissue that they area heavy and they ache from the weight they carry and that's the pain I feel, a deep, deep ache in my lungs that sometimes make me cry out in pain and sometimes makes me swear in annoyance! I have pain killers but I feel the pain so often that I am very wary of taking the pain killers because of the possibility of damaging any of my other organs, I can't afford for anything else to wrong before I get my new lungs.

Anyhoo I had a nap yesterday and it settled down and I feel much better after a good night sleep next to Brad. I've noticed lately that my beautiful fiance can't settle in to sleep at night if I'm not settled. If I wake up to a coughing fit, he stirs and can't rest until I'm ok again, even if I just turn over in bed he turns over as well, we are so in sync with each other. I've never been like that with anyone else and I must say that it contributes to how close we already are.

Sorry its a short post today but I've got lots to do, my cousin is getting married in a few weeks and the kitchen tea for his fiancee is tomorrow so I've got to buy her a gift.

love
K

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